Genetic Research

Genetic information can not only identify individuals but also create stigmas, issues relevant to those affected by conflicts or disasters as personal information could be used against them. In addition to the type of data collected, the study designs for genetic research are also quite complex and may not have an immediate, beneficial impact on the affected population since most are for the purpose of collecting foundational knowledge. In fact, the lack of benefit to the immediate needs of disaster survivors from genetics research is a concern noted by participants, particularly following acute emergencies. These concerns often impact perceptions and increase suspicions about genetic studies in disasters or with populations affected by disasters. While the importance of privacy and confidentiality are perennial issues (see Biological Sample Study), other ethical considerations of this methodology should include:

Which of the following are features of your study?

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